He's Lived His Entire Life Allergic to the Sun: Now He Helps Kids With the Same Condition

Craig Leppert knows what it's like to grow up with a rare condition most people have never heard of.

Leppert, 53, was born with erythropoietic protoporphyria (EPP) — essentially, an allergy to sunlight. As a result, he was often in pain anytime he went outside as a child. It took his parents and doctors some time to diagnose and understand the condition.

""Take the throbbing, hurting feeling of being cut with a knife and getting burned on a stove, those mixed together is what it feels...